I don’t know if anyone is still here….but wanted to give an update!
Life is good. We are blessed for sure!
Ryan has been healing in ways that can only be judged as miraculous. We received an opportunity for him to get his blood tested at home instead of having to take him to the doctor each week. This is awesome, because even though we only live 5 minutes from the office, it’s difficult for him.
We are balancing out his blood thickness and that, along with a new migraine medication, it’s making a huge difference in his attitude and energy level.
Speaking of a huge difference, we have a friend that moved into our other bedroom. She has been such an amazing gift. Having someone home with Ryan all day is amazing. No worrying about how he is doing if not answering the phone. It’s amazing. She watches Avi at home 3 of 5 days during the week too, which is fantastic because Avi gets to play with her daddy. She’s going to the babysitter 2 days a week to give Ryan more of a break too.
I love the stories I get to hear that happen during the day. For example, Avi was obsessed with the Big Bad Wolf yesterday:
AVI: SUZANNE, the Big Bad Wolf put the tooth fairy in JAIL! That wasn’t nice of him.
SUZ: No, it wasn’t! Poor tooth fairy. She doesn’t deserve that.
AVI: No, but he DID IT. Because he’s BIG! He’s BAD! And he STOLE MY MAGIC WAND.
SUZ: What a mean old wolf!
AVI: We need to STOP him. The Big Nice Wolf couldn’t do it because the Big Bad Wolf hid from him and he couldn’t find him ANYWHERE.
SUZ: What a SNEAKY WOLF.
AVI: Hello! I’m a superhero!
SUZ: Oh thank GOODNESS you’re here, Superhero. Avi needs help getting her wand back from the evil Big Bad Wolf. I think she can do it, but she needs help from a superhero.
AVI: I can do it! *runs off to help Avi* TO THE RESCUE!!!